September 28th Oops. It has been a few days since I updated. There hasn’t been a ton of new information or news to spread..so I waited. Today was weird. Well, not weird, just kind of somber. I put some phone calls and mycharts messages in to the UofM offices in hopes of hearing something back regarding meds or appointments. I …
Go Blue!
Septembr 24th I feel like the clouds parted a bit. We feel a few burdens lifted from us. The road is still very very long but when that blue line shows up on the map app…and you know which way to go…you feel a sense of relief. We met with UofM on Thursday morning. This was a virtual call and …
First Day of Fall
September 22 I could really feel the fall season today and how perfect for it to be on the actual first day of fall. I LOVE summer. I wish it could be summer all year around. But….I also love the fall colors, brisk air and sloppy sweaters with boots. Mark and I took a very short walk out into the …
U of M, Sleep and Meets
September 18th We decided to get more nutrients in him, it had to be juicing because solid foods were causing him pain. I decided I would juice with him. Man, thats hard! I have always wanted to do a juice fast just for funzies. Now is my chance, I have a bigger reason and a push to do it but …
Where were you?
September 16th-a.m. This is one of Mark’s favorite songs…he sings it loud while he mows the lawn. Like at the top of his lungs. I can hear him inside. He has handed down this trait to Hatcher. They both sing it well. (video at the bottom) (Youtube has other versions of this song by the same artists if you want …
A Small Beam of Light, off in the distance.
Don’t get me wrong. We’ve not given up..because we really haven’t started yet. Thats really the big issue. What is with the waiting? Mark is frustrated. I’m frustrated. All my friends I have spoken to and love us..are frustrated. We are not really laid back kind of people. Some days I wish I was, but in this situation I’m glad …
How many hats can one gal wear?
September 13th So not only will I be (co)responsible for giving Mark dialysis every day (5 days a week) but I have also become his personal masseuse. The pain in his back has been overwhelming. If his gut feels okay, his back is killing him. I can only think that this is a direct by-product (yes, I believe that was …
September 11
I’m still here. There may not be alot happening, or not as much progression as we would like but we are still here and so I’ll continue to keep you all updated. We arrived in Grand Rapids just after 2pm. We were flown in a King Air (dual prop) by 2 pilots Mark knows and it was all arranged by …
Wrapping it up at Mayo
September 9th. We were up until 10pm at the Gonda Building getting Mark’s MRI completed. I watched people go in and come out but Mark’s seeem to take forever and we were the second to the last people to leave. We walked back in the dark. I don’t even remember what we talked about. Mark slept better last night but …
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