May 30th 2022 We talked about hospice maybe once. I had learned that you do not have to be on deaths door to call them in. They can be involved in palliative care for a while. I really was quite naive when it came to hospice. I pictured a hospital set up at your house…a nurse there to care for …
TLG&TLTA part 2
When she came in and sat down I knew it wasn’t good. I mean, I knew it wasn’t good anyways but when she did this I knew it was bad. She asked what our oncologist/physicians have told us about his diagnosis. I scoffed a little because I never felt like the oncologist was ever very transparent and honest. I told …
The Lord Gives…and He Takes Away
May 14th Every time I write the date, I can’t believe how much time has passed and then again how short its been. I don’t know if this will be incredibly long or just in many sections. Where I left off: Friday was dialysis at home, and although I was able to get the needles in…it didn’t go well. Mark …
Fistula at Home
May 5 This was induction day! We didn’t need it though becuase Kiyah came on her own but I urge you all to go eat tacos and celebrate her (if you need an excuse)! This cancer/dialysis is hard. Have I ever stated that? I feel like yesterday was over emotional. We have been trying to get UofM to do an …
Holy Hot Mess
May 2 (we are covering April 28th through this morning) Remember I also do this for myself….because I’m not journaling and I will never go back and remember how this all went down. I should be journaling on top of this to record my inner thoughts…the ones you will never read or hear…for my soul. But I probably wont. This …
CVC is OUT!
We did got to the Surgical Center, which is like some small hidden office behind Walgreens on 36th street, and Mark had his CVC taken out. Its a pretty simple and quick procedure. They numb it like you would a tooth and then they pull it out! They had to unstick adhered skin/scarring to the “cuff” of the lumen (and …