October 21-10:20am I thought appraisal day was tomorrow. Whoops. Good thing I already took the time to clean countertops, sweep floor and put dishes away. It helps but I would have preferred it to present better. Mark is SOOO tired. We think it’s the Lenvima. Side affects are fatigue and headaches (among other things) and he is experiencing both. He …
Short and Sweet-little tweets
October 18th I thought I’d do smaller short updates between publishing so I could get more details but its already Monday! I’m not looking forward to dialysis. I just don’t want to do it but once again remind myself, I’m not the patient. Mark does not enjoy this either. Saturday was the race and I did post about that on …
Fistula Day
October 15th This won’t get very far before my computer will crash. I have GOT to find time to get the battery replaced. Time..who has enough of it.? 🙂 I also can’t wait a full week to update because then I forget what I wanted to say. We had 4 days of dialysis at home and each day was a …
Post Weekend
October 11 Watching the Chicago Marathon got me itching……is so hard to stand still so I know all of this is REALLY hard for Mark. To watch so many people come and help us and to watch our little retirement home (now our soon to be next home) be built by other people. This past weekend Mark felt a little …
Back up the boat…I got a bit behind
October 9, 2021 It’s been over 2 months since this all started. August 5th we went to the ER the first time. Monday October 4th was the first treatment for his cancer. August 19th he went on dialysis. Next Friday, October 15th he gets his fistula and I’ll explain that later. Today was the Portage Invitational. This cross country invite …
Invite to Pity Party: if you don’t want to come. don’t read.
I don’t want to do this. I dont’ want a dialysis machine in my house. I don’t want a water line running across my floor. I don’t want to make a Pak I don’t want to make a Sak daily! I don’t want to take vitals every 30 mins I don’t want to hook my husband up to a machine …
Moving Home and Moving Homes
September 5th…HA!!! Its October. October 5th Yesterday was good and rough at the same time. We knew it would be a long day so I spent time the night before packing up the car to be prepared. I even made a bed in the back so Mark could lie down if there was more comfortable for him on the travel …
Its October?
10-1-21 I lost another month!!?? August was a blur and so was September. Usually time flies because its so fun filled with activites…but you can lose time with mundane repetative activities and exhaustion. I know some of you know what I’m talking about. I had a hamstring cramp last night. Calf cramps happen all the time and are no fun …
Good News
September 28th Oops. It has been a few days since I updated. There hasn’t been a ton of new information or news to spread..so I waited. Today was weird. Well, not weird, just kind of somber. I put some phone calls and mycharts messages in to the UofM offices in hopes of hearing something back regarding meds or appointments. I …
Go Blue!
Septembr 24th I feel like the clouds parted a bit. We feel a few burdens lifted from us. The road is still very very long but when that blue line shows up on the map app…and you know which way to go…you feel a sense of relief. We met with UofM on Thursday morning. This was a virtual call and …